Could technological possibility, not human needs be at the heart of much neurotech?
Very enjoyable talking at the European Brain Summit on Patient Centricity. 12 October 2021.
I focused my talk in three areas - my surprise at how patient centricity was not actually central in the treatment of neurological diseases and why that is; a discussion of the Scientific Method and how the failure to seek out sceptics and apply rigorous challenge to the hypothesis and so involve patients and other stakeholders is actually a failure of the scientific method. Then discussion about what could happen to rectify this in funding, in capacity building and generating better understanding of what meaningful engagement means.
I am on at 3.17-3.29.
This was the start of my collaboration with the Dana Foundation and the European Federation of Neurological Associations. On a research project on what Patient Centricity means and the creation of a framework for Meaningful Patient Involvement. More to come!